It’s a misunderstood and often misdiagnosed illness. ME or Chronic Fatigue Syndrome, yet it effects at least a million Americans. But there are no diagnostics and no treatment protocol. As a result many people who suffer from it are dismissed by the medical community. There is a rally in Denver on Saturday May 12th, at the state capitol as part of a global day of action, #millionsmissing -to recognize the millions of people who are missing from life due to this illness. Nora Gayer who has herself been dealing with Chronic Fatigue Syndrome/ME for 5 years spoke with KGNU’s Maeve Conran about what it’s like to live with an invisible disability.
#Millionsmissing is a global day of protest to demand health equality for people with ME. The Denver event will take place on May 12th, 2018 10:00am-11:30am on the west side of the State Capitol. The institutions tasked with protecting the public health of Americans – in particular, the National Institutes of Health – have spent the past three decades wholly reneging on their responsibility in the case of ME. We are demanding that the director of the NIH, Dr. Francis Collins, invest with great urgency into biomedical research for ME with the goal to a) find a diagnostic biomarker; b) initiate clinical drug trials; and c) produce an FDA-approved treatment.
A new documentary Unrest, shines a light on what it’s like to live with ME. Find out more at unrest.film.